Procedure Eve Eve
We're in New York. We made it. After leaving late on Wednesday - when we tried to leave on Tuesday - I'm just glad that we actually made it up here. It's late - nearly 2 AM EST and we have an appointment first thing in the morning. They said that they wanted Shaina at her worst on Tuesday. No problem there. 😂
So happy that we got a chance to visit with family in Atlanta, Charlotte and Long Island. Shaina got a chance to share her story and connect with family she hasn't seen in a very long time; for way too long. Add in that we had a #MEAction media training session today (ahead of May 12th’s #MillionsMissing) as we drove from Virginia to NYC, and every day has been a full one.
The training session could have been better. We spent too much time talking about storytelling and not enough letting us practice our own storytelling. Plus, there was too much cognitive zapping material that wasn't ideal for the target audience - people with ME/cfs. If you caught the comic book style primer on Shaina's issues, you saw how ME/cfs can make even the simplest tasks much more draining than usual. That includes mental and emotional tasks too - not just physical ones. Today was a prime example of that.
Considering how much Shaina has been been through over the last few days, it's amazing that she's as functional as she is. I keep waiting for the second shoe to drop but it hasn't happened yet. Fingers crossed that it never does.
I'm dozing off as I write this so I'm going to call it and fill you in tomorrow. Full day of medical appointments tomorrow - including a last minute cardiac clearance that would have been much better if we could have done it in New Orleans but we didn't get notified in time. Ah well, bring on hell day. Let's see if we can get a slice of heaven in before we go to bed tomorrow night.
P.S. Before we go, we've been wearing beacoup matching couple shirts. It started with a “Happily Ever After Couples Tour” shirt I got us for Easter this year. So along that theme, here are a couple from the past few days.
